See also:
- Congenital Heart Disease Information and Resources
- Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.
- Adult Congenital Heart Association - Information, resources and support for adults with congenital heart disease.
- About.com - Information about congenital heart defects, and February 14th being recognized as a day for hearts.
- AMA: Statement for Health Care Professionals - Guidelines for evaluation and management of common congenital cardiac problems in infants, children, and adolescents. From the committee on congenital cardiac defects of the council on cardiovascular disease in the young.
- American Heart Association - The AHA website is a simple introduction to the concept of congenital heart disease, with layperson explanations of the various conditions, tests for diagnosis and treatment options.
- CHD Awareness Day - The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.
- CHD Support Graphics - A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart.
- Congenital Heart Disease Treatments - Short and simple explanations of the different procedures used in treating heart birth defects.
- Congenital Heart Diseases Their Study and Treatment - A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999)
- CongenitalHeartDefects.com - Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
- Feeding Your Infant With Congenital Heart Disease - American Heart Association gives details on baby's growth, how to feed your baby, feeding tips, breastfeeding, formula feeding, tube feeding, starting solid foods, asking for help, heart medication and feeding and looking ahead.
- Fontan Operation - Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.
- Grown Up Congenital Heart Patients Association (GUCH) - Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
- Heart Defects: Truncus Arteriosus Type 1 - Information, diagram, symptoms and medical treatment, from the Children's Heart Institute.
- Heart Disease Online - A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
- Hearts Of Hope - Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.
- HLHS Information - Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
- International Society for Adult Congenital Cardiac Disease - The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.
- MedicineNet - Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.
- Miami Children's Hospital - Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
- Minimal Invasive Congenital Heart Surgery - An article about treating birth defects of the heart using this techniques.
- Our Little Braveheart - Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
- Palliative Operations - The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery.
- Persistent Pulmonary Hypertension of the Newborn - A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center.
- Resources from California State University - Very extensive list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
Media publications
- Coping with Congenital Heart Disease in Your Baby - Article with some useful information, published by The American Academy of Family Physicians. (Published 1999.04.01)
- Ventricular Septal Defect - VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros. (Published 1998.02.08)