- Bandaides and Blackboards
- Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories. - Adolescents Psychological Complications of Chronic Illness - Information from The Child Health Library of Children's Hospital of Pittsburgh.
- Children and Grief - Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
- Chronic Illness: New and Old Ideas to Care for Children - Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project. [PDF]
- Dealing With a Health Condition - Explains teenagers how to cope, to take control, deal with others.
- Living with Childhood Illness and Disability - Resources page by the Center for Children with Special Needs includes handouts on safety, Disability Act, school preparation, the Internet.
- Pain and Chronic Illness in Children - Short paper on the importance of pain management. [PDF]
- Parental Advise on Coping with Chronic Illness of your Child - Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
- Promoting Resilience in Youth with Chronic Conditions and their Parents - Paper on family centered care, describes impact, principles, assessment, healthy family functioning. [PDF]
- Shared Vision - Complete article (also as PDF) on longterm needs, financial and medical planning.
- Starbright Foundation - Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms.
- Teenagers and Coping with Chronic Illness - Tips and strategies for parents with newly diagnosed teenagers.
- The Child With a Long-Term Illness - AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
- What is a Chronic Illness? - Explains to children what their ill friend or relative experiences and what they can do themselves.
- Youth in Transition - Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management.