- Children of the Moon - A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum.
- National Organization of Rare Disorders - Xeroderma Pigmentosum - Offers alternative names, a general discussion and resources.
- Online Mendelian Inheritance in Man - Xeroderma Pigmentosum - Includes summaries of genetic research results and citations.
- Understanding Xeroderma Pigmentosum - Online booklet providing a general overview and description of the disorder and answers to frequently asked questions. Produced by the US National Institues of Health. [PDF Format]
- Xeroderma Pigmentosum - An article about this disorder in English and Italian along with some images.
- Xeroderma Pigmentosum Society - Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.
- XP Support Group - UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.