- A Diary about Marfan's - Marfan's patients diary of the diseases events in her life. Includes a list of links.
- American Heart Association - Marfan's Syndrome - Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
- Canadian Marfan Association - Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
- Central Ohio Marfan Support Group - Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
- Guide to Marfans Syndrome - Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
- International Federation of Marfan Syndrome Organizations - A global information center providing links to Organizations around the world.
- Life and Issues of Marfan's Syndrome - Personal site by which describes the pathology and gives a bit of advice.
- Living With Marfans - This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
- Marfan Association UK - The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
- Marfan Support and Information - Support group in New South Wales, Australia.
- Marfan Syndrome - Comprehensive guide to this connective tissue disease.
- Marfan Syndrome - Online chapter from The Merck Manual of Medical Information.
- Marfan Syndrome - Article from eMedicine.
- Marfan Syndrome - A Question-Answer format page of information.
- Marfan Syndrome Forum - Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
- Marfan Syndrome: Does Diet Play a Role - Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
- Marfan-List - Information about an e-mail mailing list. Also includes links to other online support groups.
- Marfans Research Foundation - Irish charity with information on fund raising activities and the condition.
- MFS Type 1 Fibrillin Gene - A comprehensive site including major resources listed as well as genetic information.
- National Marfan Foundation - Providing accurate and timely information about the disorder to patients, family members and physicians.
- Polish Marfan Association - General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
- Questions and Answers about Marfan Syndrome - From the National Institutes of Health.
- Slovak Marfan Association - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
- South African Marfan Syndrome Organisation - Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
- Swedish Marfan Association - Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
- The Mystery of Akhenaten: Genetics or Aesthetics? - A history of the pharoah along with theories applied to what he may have had, including Marfan's.
- Theresa E. Pageau - A Memorial Tribute - A tribute to a patient with this disease accompanied by information and links related to donating.
- Univ. of Washington - Marfan Syndrome - What the disease is and includes the impacts on daily life.
- Yahoo! Support Group - Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.