- Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program - Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
- Danielle's Website - Personal story of a child who has the condition, Tuberous Sclerosis. Contains links and photos.
- Information and support for persons affected by Tuberous Sclerosis Complex in Canada. - Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
- Kolten's Tuberous Sclerosis Page - Describes his seizures and surgery.
- Matthew's Site for Tuberous Sclerosis Awareness - Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
- National Library of Medicine - A list of synonyms, a summary and major features of tuberous sclerosis.
- NORD: Tuberous Sclerosis - Offers alternative names, a general discussion and further resources.
- Pediatric Oncall- Tuberous Sclerosis - Offers commonly asked questions about this disease.
- Team Tamara - Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
- Tuberous Sclerosis - A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Tuberous Sclerosis - Lisa's Site - An incurable genetic condition that causes tumors to grow in various places in the body.
- Tuberous Sclerosis Alliance - US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
- Tuberous Sclerosis Association - UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
- Tuberous Sclerosis Fact Sheet - Developed by the National Institute of Neurological Disorders and Stroke (NINDS).